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Research

  • Many women who are carriers of the disorder have symptoms of mild hemophilia and researchers have just begun to fully understand the importance of bleeding in women carrying the disorder ("Fred Hutchinson Cancer Research Center").
  • The Fred Hutchinson Cancer Research Center is supporting research into potential cures and treatments of hemophilia largely focusing on transplants in addition to other treatments.
  • Dr. Storb's clinical research team was able to create a radical new approach to bone-marrow transplantation, which could open the prospect of a cure for many diseases not just hemophilia. ("Fred Hutchinson Cancer Research Center").
  • A recent landmark has also been achieved in gene therapy. The British successfully treated six patients suffering from hemophilia B.
  • The virus used to carry the replacement factor IX gene was created by researchers at St. Jude Children's Research Hospital in Memphis.
  • X-factor concentration injection costs for hemophiliacs costs about $300,000 every year. However the prospect of this single treatment to cure the disease would only cost a one time payment of $30,000.

This website has no affiliation with the  the organizations above.

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